What if you only had half a heart? Children born with HLHS will face this question their whole lives. Hypoplastic Left Heart Syndrome (HLHS) is a rare Congenital Heart Defect (CHD) that affects roughly 1% of children born with a CHD. In a child with HLHS, the left side of the heart is too small to pump blood out to the body, and, within a few days after birth, the child's body becomes oxygen-starved and medical intervention is required to keep the child alive. Surgical techniques were developed that have made living into adulthood a possibility but the question of what treatment will look like for adults needs to be answered. How long can a re-tooled heart do the work of a normal heart and what happens when it can't anymore?
Help us to find out the answer to these questions and support the innovations necessary to let kids like Micah live a full and healthy life.
Please join us for our 1st annual Research Reception. We are raising awareness for CHD research and raising money to support a research project through the Children's Heart Foundation in honor of Micah.
Our virtual research reception is June 10th at 6:00pm (CT). We have exciting speakers from Cardiac Networks United and Micah's cardiologist, Dr. Schutte. You can register for the reception here:
After registering, you will receive a confirmation email containing information about joining the meeting. See You There!"