Welcome to Team Nana’s Funraising page.
A little bit of our journey starts off as a tail spin. Ayana wasn’t diagnosed with her complex heart condition (Tetralogy of Fallot with Pulmonary Atresia and MAPCAs) until she was 26 hours old. We were fortunate to have the surgeons that pioneered her repair surgery in her back yard- however she was still rushed around to numerous hospitals before finally getting her to the correct hospital and the correct surgical team. Ayana has been through 4 open heart surgeries at 15 days old, 6 months old, 14 months and 18 months old with a 5th near in sight. She is now a 3 year who is so full of life and love. She was also honored with a feature for this foundations 25 year anniversary project.
Research is so important because 20 years ago baby’s born with Ayana’s condition didn’t have a chance at life. The doctors would tell the families quality over quantity for life expectancy. Which is unfathomable to me. Ayana’s surgical team predicts Ayana to live well into her 50s or longer with medical advancements-which is one reason why we walk!
1 in 100 babies in the United States will be born with some kind of heart defect. It is the most common birth defect but yet it’s grossly underfunded. I, myself didn’t know anything about heart defects until I was thrown in this world and I know many other people are in our same shoes.
We raise awareness & funding because children like Ayana deserve to live a full seemingly normal life.
Help us reach our fundraising goal by making a donation today. You can also become a member of our team and join us at the walk!
Thank you in advance for your support!