Our team is raising funds for congenital heart defect research - join us!
1 in 110 babies. 1% of babies. That's how common congenital heart defects (CHDs) are, and before having our Brayve Brayden, I had no idea that statistic was so high. In fact, I was so naive to birth defects, I was stunned when our guy entered the world and turned it upside down for us during the 1st hour of his life.
Brayden is 1 of those extra special kiddos born with a CHD, specifically Tetralogy of Fallot. After a completely uneventful pregnancy with "normal" ultrasounds, our guy joined our family at 37 weeks on September 17, 2020 and was full of surprises from the get go. Along with his CHD, Brayden had an imperforate anus (he was born without a booty hole), hydronephrosis of his left kidney, and a duplicated urethra.
We soon found out that he had vACteRl association, which is a disorder that affects many body systems. VACTERL stands for vertebral defects, anal atresia, cardiac defects, tracheo-esophageal fistula, renal anomalies, and limb abnormalities. People diagnosed with VACTERL association typically have at least three of these characteristic features.
Thankfully, we have been blessed to live so close to Nationwide Children's Hospital in Columbus, OH where the heart center, colorectal center and urology centers are phenomenal and have literally saved our buddy's life. Bray has had 7 surgeries to date, and had his open heart surgery at just 8 weeks old to repair his CHD.
Why give? Congenital heart defects are the most common birth defect in the nation, impacting ONE in every 110 babies each year. The Children’s Heart Foundation exists to make sure these babies - and everyone impacted by CHDs - live long and healthy lives. Because of research, today there is greater hope for babies born with, and adults living with, congenital heart defects.
Help us reach our fundraising goal by making a donation today. You can also become a member of our team and join us at the walk!
Thank you in advance for your support!