2022 Pittsburgh Congenital Heart Walk

Millie Sue
Millie Sue

Hope For Amelia

Congenital heart defects are the most common birth defect in the nation, impacting ONE in every 110 babies each year. The Children's Heart Foundation exists to make sure these babies - and everyone impacted by CHDS - live long and healthy lives. Because of research, today there is a greater hope for babies born with, and adults living with, congenital heart defects. 

If it wasn't for the current knowledge and development our little girl would not be here today. Aug 20th, 2021, at just 8 weeks old, we took Amelia to the hospital because we thought that she could've been dehydrated. Unfortunately, it was much worse. She was going through heart failure. If we would've waited any longer, we could've lost our baby. Instead, children's hospital jumped into action and cared for our little girl. They had the knowledge to recognize that her breathing pattern was abnormal and went straight to work. She was quickly diagnosed with a rare heart defect called cardiomyopathy. She underwent two open heart surgeries, one to insert the VAD and one to successfully remove it. Without research we wouldn't know that a VAD could save my daughters life. During her hospital stay she had blood clots that formed and released causing two strokes and also resulting in multiple seizures. She also underwent surgery to have a GTube placed. God willing, we were discharged from the hospital 75 days later on Nov. 3rd, 2021 and she has since been thriving being home. Amelia was listed on the transplant list for six months but to our surprise and the doctors she conquered through. As of today, Amelia has been removed from the transplant list and is Gtube free!! Although she may not need a transplant at this time, we are preparing for the day she might. There is no given answer on when the day might come or if it ever will. Her battle is far from over but we pray that we as parents can provide her the life that she deserves, full with love and laughter, even during the hardest days. Thank you, UPMC Children's Hospital of Pittsburgh, for saving our daughters life. We will be forever grateful for every single person that had a hand in her care. Thank you to those who help join us in supporting congenital heart defect research by providing them the funds they need to continue doing the amazing research that they are. 

We ask that you join our team to show support, not only for CHD research, but for Amelia as well. Any donations are greatly appreciated. You can also simply become a member of our team and join us at the walk as well!

Thank you in advance for your support!

View More