2022 Philadelphia Congenital Heart Walk

Romes wayy

Rome was prenatally diagnosed with CHD and born on 11/12/21. Shortly after birth and many different test doctors were able to better determine The form of CHD Rome had and diagnosed him HLHS. Hypoplastic left ventricle, with plate like pulmonary atresia, straddling right AV valve. At 4 days old Rome underwent his first surgery and got 3 onyx stents. By the age of 1 Rome will have 3 open heart surgeries. Romes broken heart has made ours whole. Though we may not know what the future has in store for us Rome has proved day in and day out that he is a warrior! Our little heart warrior is so brave and inspiring. I thought I’d have to teach my child about the world but it turns out I have to teach the world about my child. We have wept, we have wondered & we have prayed. We pray for the families of other CHD warriors and ask you all to do the same . Everyday is a battle, and we never know what to expect but we are strong believers that the strongest hearts have the most scars. CHD is not curable, it’s there for life but together we can raise awareness, for education for funding & much needed research. When life gets tough our little warrior gets tougher. Join us in the fight against CHD and watch our warrior grow. 


Together we can make a life-saving difference! Thank you in advance for your support.


Thank you in advance for your support!

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