2022 Philadelphia Congenital Heart Walk

Brayden's Bunch

Our team is raising funds for congenital heart defect research. 
Because of research, today there is greater hope for babies born with, and adults living with, congenital heart defects. Brayden is one of those kids. 

Congenital heart defects are the most common birth defect in the nation,
impacting ONE in every 110 babies each year.  Brayden was diagnosed with a moderately large Ventricular Septal Defect & Patent Foramen Ovale (essentially 2 holes in his heart) when he was 6 days old. Immediately, he was placed on multiple medications to help his heart function and drain excess fluid from his body. At 4 months old, he was scheduled for open heart surgery.

To say we were devastated would be an understatement. 

A week before surgery, we arrived at our pre-op appointment to go over all of the testing & details needed for surgery. Our warrior, our hero, our baby boy had gained almost a pound since his prior visit. This was HUGE!! So much so, that our team of doctors and surgeons decided that it was in Brayden's best interest to cancel the surgery and return to our prior "wait & see" status.

That was almost 6 years ago. 

Today, Brayden is a happy, kind-hearted, loving little boy who is THRIVING. Although there could become a need for surgery again in the future, research has provided us with a possible option that is not open heart, but instead via cath.

We are extremely grateful, but can't help to think about all of the other families who aren't so lucky. CHD is cruel and unfair. So many of our friends have undergone multiple open-heart surgeries.  So many battle for each breath, every single day.  Some of our friends have never seen outside hospital walls or met their siblings in person.  Some of our friends have been taken from us way too soon.  

 We will not stop until every child born with a CHD can be saved. 

Thank you in advance for your support!

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