Join us in supporting congenital heart defect research!
Raising funds for congenital heart defect (CHD) research is not only critically important to all babies born with, and children and adults living with CHDs, it is also personally meaningful to me.
By donating to help me reach my fundraising goal, you’re helping to fund the most promising research into CHDs - America’s most common birth defect.
Together we can make a life-saving difference! Thank you in advance for your support.
Our lives forever changed in September of 2021 when we found out our sweet Nina would be born with a CHD called Tetralogy of Fallot. What is TOF you may ask? To sum it up briefly:
- VSD- Ventricular Septal Defect: hole in the lower chambers of the heart
- Overriding Aorta: the position of the aorta in a normal heart should be over the left ventricle, but is out of place by sitting above both ventricles.
- Pulmonary Stenosis: The pulmonary valve is too small or narrow causing the right ventricle to overwork. This causes the 4th issue below.
- Right Ventricular Hypertrophy: the buildup of muscle from being overworked.
All of these issues cause improper blood flow and the mixing of oxygen rich and oxygen poor blood in places it shouldn’t mix.
Fast forward to April of 2022. Nina had open heart surgery at 4 months of age. Surgery was successful and she was in and out of the hospital in less than a week! AMAZING! You would never know she had open heart surgery. She is meeting milestones and doing great! She is the strongest little girl we know and will forever be our hero.
Heart health will always be an important part of our lives, especially since Nina may need a pulmonary valve replacement in the future. Even though she had her TOF repair and it was successful, the valve itself may require a replacement. Only time will tell. Nina will have yearly heart checks to make sure everything is still working as it’s supposed to.
We have had the most incredible support along this journey and we can’t thank you all enough!
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