Join me in supporting congenital heart defect research!
Thank you for visiting our fundraising page! This is our sweet heart angel, Rocco. At 20 weeks pregnant, Rocco was diagnosed with Tetralogy of Fallot with Pulmonary Atresia. He was born at 38 weeks and sent straight to the cardiac ICU at Nationwide Childrens Hospital. He had at Cath procedure at 8 days old where 3 PDA stents were placed to allow blood flow to his lungs. He handled the procedure well. His anticipated full repair (open heart) was to be between 4-6 months old. Genetic testing was also done after Rocco was born, and he was found to have a partial duplication of Chromosome 4, or partial trisomy 4q. However, the Doctors were confident that his genetic condition should not affect his heart function. Based on limited research of his trisomy, and his CHD that is typically repairable, we had faith and reason to believe Rocco would have a full repair, and go on to live a seemingly normal, healthy life, with frequent checkups. Heartbreakingly, this was not the case for our sweet boy. He did well the first few weeks of his life, and then slowly started declining. His heart function was not improving despite many tests and different medications. Medical staff couldn’t figure him out, and called him their medical mystery. It came down to cardiologists recommending heart transplant. We had just begun the process of becoming a candidate, but Rocco had other plans just a few days later. He became our angel on May 8th, 2022 at 10 1/2 weeks old. Rocco was/is a fighter, and brought so much joy in the short time he was here. Our love for him is immeasurable. He has inspired us to support CHD research and contribute to this cause and hopefully improve the testing and treatment in the years to come. We walk in honor of Rocco. Rocco’s story matters. All CHD survivors and angels matter. We will keep his memory alive through supporting and giving to other’s. Heart children are incredibly strong and resilient; they are Heaven sent.
To our Rocco, Mommy and Daddy love you and our baby, you’ll always be❤
Raising funds for congenital heart defect (CHD) research is not only critically important to all babies born with, and children and adults living with CHDs, it is also personally meaningful to me.
By donating to help me reach my fundraising goal, you’re helping to fund the most promising research into CHDs - America’s most common birth defect.
Together we can make a life-saving difference! Thank you in advance for your support.
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