Join me in supporting congenital heart defect research!
Ollie was born at 11:20pm on October 6th, 2021 at Missouri Baptist Medical Center. Within minutes of delivery everyone in the room knew something was wrong. He was quickly taken away and transferred to the Cardiac Intensive Care Unit at St. Louis Children's Hospital.
He was then diagnosed with a rare and critical congenital heart defect - Infracardiac Total Anomalous Pulmonary Venous Return with obstruction. In this condition, the 4 pulmonary veins that carry oxygen-rich (red) blood to the heart from the lungs aren’t connected correctly. Normally these blood vessels should be connected to left chamber of the heart. Instead Ollie's veins were connected to his liver.
Ollie was 12 hours old when he was placed on ECMO, the highest level of life support. This machine pumped out Ollie's blood, infused it with oxygen, removed carbon dioxide, and pumped the blood back into his body.
On October 8th at 10:00am they wheeled Ollie down to the operating room. His open heart surgery lasted around 11 hours. Ollie’s chest remained open after surgery for 7 days before they were able to close him.
He spent his first 5 weeks of life in The Heart Center at St. Louis Children’s Hospital. Since then he has had 3 Cardiac Catheterizations to balloon veins and place stents and has ended up in the CICU twice with viral infections.
Raising funds for congenital heart defect research is personally meaningful to our family.
By donating to help reach our fundraising goal, you’re helping to fund the most promising research into CHDs - America’s most common birth defect.
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