Join me in supporting congenital heart defect research!
This year on May 15 I will be walking with my mom and dad in the New England Congenital Heart Walk. Raising funds for congenital heart defect (CHD) research is not only critically important to all babies born with, and children and adults living with CHDs, it is also personally meaningful to my family and I.
I was born with congenital heart defects - I have two holes in my heart but my cardiologist thinks I am doing great! We found it was due to something called Holt-Oram Syndrome, also known as hand-heart syndrome. I was also born with upper limb differences but have learned to use my hands and arms in my own unique way. I have no limits and can do almost anything all the other kids can! The doctors have told us people with Holt-Oram Syndrome should be followed by cardiology for life due to the heart muscle weakening throughout time.
By donating to help me reach my fundraising goal, you’re helping to fund the most promising research into CHDs - America’s most common birth defect.
Together we can make a life-saving difference! Thank you in advance for your support.
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