Lace up for Lincoln and join me in supporting congenital heart defect research!
Raising funds for congenital heart defect (CHD) research is not only critically important to all babies born with, and children and adults living with CHDs, it is also personally meaningful to me.
By donating to help me reach my fundraising goal, you’re helping to fund the most promising research into CHDs - America’s most common birth defect.
Lincoln was born on February 15, 2022 with a critical CHD called Hypoplastic Left Heart Syndrome (HLHS) which was diagnosed at our 20 week fetal anatomy ultrasound. HLHS is a rare heart defect where the left side of the heart is severely underdeveloped. This means Lincoln didn't have his left ventricle to pump the oxygen rich blood out to his body.
We fully anticipated a series of 3-4 open heart surgeries to help our little man thrive. Unfortunately, due to the HLHS and a severe infection, Lincoln gained his angel wings on February 23, 2022 during open heart surgery.
CHDs affect 1 in 100 babies born. That's about 40,000 babies born each year with a heart defect ranging from mild to severe. HLHS affects only around 5,000 babies born each year, or 1% of all congenital heart defect cases.
CHD research is severely underfunded and together we can make a life-saving difference!
Thank you in advance for your support,
Rose, Adam, and angel baby Lincoln Brege
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