Join Team Mighty Mark in supporting congenital heart defect research!
Raising funds for congenital heart defect (CHD) research is not only critically important to all babies born with, and children and adults living with CHDs, it is also personally meaningful to me.
By donating to help me reach my fundraising goal, you’re helping to fund the most promising research into CHDs - America’s most common birth defect.
Together we can make a life-saving difference! Thank you in advance for your support.
In April of 2017, at 24 weeks pregnant, I walked into what I thought would be a routine ultrasound for my twin boys. Following that ultrasound I was ushered into a cardiologist’s private office to learn that baby A was diagnosed with four congenital heart defects known as Tetralogy of Fallot. I can vividly remember every second of those moments. My world stopped and I had no idea what the coming months or years would look like for my family. The journey with our Mighty Mark has not always been easy, but upon entering the world of heart families I quickly learned how very fortunate we are. Mark’s defects could be repaired. Surgeries and treatments had been pioneered in the decades leading up to his birth that have resulted in relatively “normal” expected outcomes for his quality and longevity of life.
Mark was in the NICU for about a month after his birth during which time underwent two procedures in the cardiac cath lab. At just shy of 4 months old he underwent his major open heart repair surgery. He was inpatient for 21 days total at that time. Mark will require at least one more open heart surgery, and he will need monitoring by cardiology for his entire life.
Mark is so fearless. He is also gentle and incredibly loving. He loves to learn! He has a special bond with his older sister Helen who he resembles so much. He loves to make Alexa play terrible music and have dance parties with his older brother Clark. He loves to bring every book & toy in his room onto his bed with his twin brother George when they are supposed to be sleeping. The world is a better place with our Mighty Mark in it!
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