Team Vive la Vivi
Thank you for supporting team Vive la Vivi!
Vivian was born with Heterotaxy and multiple heart defects. Because of her heart defects, her prognosis was grim at the time she was born. We were told she had a 5% chance to survive until 1 and a 1% to survive to 5. In October she will be turning 10! To date she has had a total of 4 open heart surgeries, and 16 heart catherization. She has benefited from medical advancements and new technology.
This will be our 9th year walking to support Children's Heart Foundation, but last year I had a real chance to look behind the curtain and understand what we are raising money for. CHF funds grants that are submitted by various hospitals and researchers. The grants support research things like medical devices. There is a lot of funding and research available for AQUIRED heart disease, but very little for congenital heart disease. Researchers must develop the devices and do the trials, then they can present the information to the medical device manufacturers. Medical device companies do not do their own research into pediatric medical devices, because honestly the return on investment is not there.
With your help and support, we can help CHF fund these grants and help improve the future for our CHD warriors. A cure might not be possible, but improved outcomes and better longevity for our kids IS possible.
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