After many years of infertilty, we were blessed with our boys in February of 2016. Ronnie was born with complex congenital heart disease, more specifically he was born with cross cross heart, DORV, pulmonary atresia, and VSDs.
His first heart surgery was a BT shunt that was done at 4 days old. This was a palliative surgery to give Ronnie time to grow before his large correction surgery.
After 4 weeks we were able to bring our boys home! Ronnie did relatively well at home. In July 2016 he picked up a virus that caused him to be life flighted back to Ann Arbor and hospitalized for another week.
The very next month was his biggest operation. He had a senning rastelli (a variation of a double switch). Basically the plumbing of his heart was re-routed, and a conduit was put in place of his missing pulmonary valve. This surgery was extremely complex and Ronnie had a very hard time recovering. He was inpatient for 3 months and during that time he had many complications, including another heart surgery to fix the VSD patch that lifted. Again, he thrived trying to keep up with his twin brother Roman. He did physical and occupational therapy to help him catch up.
In October 2017 (Ronnie was 20 months old) we received bad news that his conduit had become too narrow and he needed 2 stents placed. No one anticipated that it would narrow so quickly. The stents were placed successfully and Ronnie continued to grow and thrive. He went several years without any interventions. Most recently in November of 2021, at 5 years old, Ronnies conduit had significantly narrowed again. The team was able to successfully place new stents and expand the conduit to buy a little more time before it will ultimately have to be replaced.
The next step will be another open heart surgery to replace the conduit and make any pathway revisions needed.
In his six short years, Ronnie has endured so much pain. Congenital heart disease is grossly underfunded but, science enables researchers to make new advancements every year.
Please donate what you can.
Research is what can ultimately extend Ronnies life and improve the quality of his life.
By donating to help me reach my fundraising goal, you’re helping to fund the most promising research into CHDs - America’s most common birth defect.
Together we can make a life-saving difference! Thank you in advance for your support.
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