2021 New York City Congenital Heart Walk

Ben after his heart transplant in October 2018
Ben after his heart transplant in October 2018

Ben's Brigade

Many of you know the story of our son, Ben. He was born in May 2018 with an unexpected congenital heart defect that was diagnosed at birth. Ben was a true warrior who spent his entire short life in the hospital. During his almost eight months of life, Ben endured five open heart surgeries (including a heart transplant), several months on an LVAD, and countless challenges and complications. When he died in January 2019, our family was forever changed and we miss him every single day.

We are participating in the NYC Congenital Heart Walk virtually this year, and are raising money for the Children's Heart Foundation. 

The Children’s Heart Foundation is the country's leading organization solely dedicated to funding research for congenital heart defects. Congenital heart defects are America’s most common birth defect and the most common cause of infant death due to birth defects. About 1 in 110 babies, a baby born approximately every 15 minutes in the U.S., is born with a heart defect. CHF’s mission is to fund the most promising research to advance the diagnosis, treatment, and prevention of congenital heart defects. Please donate what you can to support this important research, and to help babies like Ben.

View More