2021 Cincinnati Congenital Heart Walk

TEAM GUS

Our son, Gus believes he has no limits. To him, it’s perfectly reasonable to climb up Daddy and try to stand unsupported on his shoulders. What could go wrong? 

Which is exactly how every child should feel.  No limits. Anything is possible.

Gus was born with a Congenital Heart Defect (CHD). 

Which often makes it impossible to forget the fear and uncertainty of his first year of life. The emergency surgery. The dreadful anticipation at each echo cardiogram.  The inevitability of the second surgery.  The constant “what if….”  

The facts around CHDs are clear:

  • ​1 in 110 children are born with a CHD.
  • 25% of children born with a CHD will need a surgery or other interventions in their first year of life to survive.
  • 25% of children born with a complex CHD will not see their first birthday.

Thanks to advancements made through research, death rates from CHDs in the U.S. have declined by 37.5% since 1999 and today more infants with CHDs are surviving to adulthood.  Yet, CHD research is highly under-funded relative to the prevalence of the disease.

Join TEAM GUS again in our 4th year in the fight against CHD!  After this crazy year of isolation and challenges, we’re happy to be participating live in the Cincinnati Congenital Heart Walk supporting the Children’s Heart Foundation on August 8, 2021!

Gus is doing beautifully.  We are grateful beyond grateful that he went from being the “sickest baby in the hospital” to an unstoppable bright-eyed dynamo.

If you’d like to make a donation, you can simply click the link on this page.  Your tax-deductible gift will make a difference!

Thank you to all the past members of TEAM GUS and all our new friends who are pushing to make anything possible!

With Gratitude, 

Matt, Michelle, Ruby and Gus


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