2021 Pittsburgh Congenital Heart Walk

Jesse's Heart

Our team is raising critical funds for congenital heart defects! Congenital heart defects are the most commonly occurring birth defect, affecting approximately 1 in 110 babies born, or a child born every 15 minutes. Congenital heart defects are the leading cause of birth-defect related mortality.

Our Story: At our 20-week ultrasound, we discovered that our son Jesse Albert would be born with a rare congenital heart disease. Tricuspid Atresia, a type of hypoplastic right heart syndrome, is a heart condition in which the right side of Jesse's heart did not fully develop during the earliest weeks of pregnancy. Although CHD is fairly common in babies, conditions such as Tricuspid Atresia occur in about 1 in 10,000 births. This condition has required Jesse to undergo two surgeries, a heart catherization, and a few emergency room visits in his first five months. He recently underwent his second planned surgery called the Glenn procedure on May 3, 2021. His next planned surgery will be when he is around 2-3 years old. 

As one might imagine, there are many complications for Jesse into adulthood. Children with CHD need lifelong medical care and support, and the funds raised by Jesse's Heart team will make a difference in lives of those with CHD.


Funded research is making a very big difference in the lives of CHD patients, helping to reduce incidences and increase survival, longevity and quality of life. Research has made a very big impact, and with survival and longevity increasing, even more research is needed to help address lifelong challenges that CHD patients will face. Every dollar in support of The Children’s Heart Foundation helps to further their mission: to fund the most promising research to advance the diagnosis, treatment, and prevention of congenital heart defects.


Please support our team, join us for the Congenital Heart Walk, or both!


To Fundraise even more, you can purchase a T-Shirt at:

https://customink.com/fundraising/

jessesheart

*Copy and paste the link above into your internet browser to order a T-Shirt!*


Shirts are $20 and orders close on July 6 at 12 PM.


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