Lillians story started when we went in for our routine 20 week ultrasound. We quickly found out we were having a GIRL. Lots of excitement and talking turned quickly into awkward silence and a really long scan. Shortly after the doctor came in and we received a diagnosis of the congenital heart defect of Hypoplastic Left Heart Syndrome and were referred to University of Michigan Congenital Heart Center. July 24, 2020 we brought our beautiful baby girl Lillian into the world. Just six days later she had her first open heart surgery (Norwood procedure) then followed by her second open heart surgery (Hemi-Fontan) November 16, 2020 at 3months of age. She will have her third and hopefully final open heart surgery sometime around the age of 2.
People that don’t know Lillian personally would never guess or know the things she has been through in her 8 months of life so far. She is the happiest of babies, smiling constantly. Looking like a typical sweet baby girl! As I reflect back on these moments, I can’t help but to think how lucky we were to be able to have the advancements in technology and the care team we have. The gift of being able to prepare (as much as possible) for the arrival of Lillian was a blessing. I am also thankful for the NOW standardized CCHD screenings that we do so that we can catch more heart defects earlier, giving these babies an even better chance of survival. This is why this cause is so meaningful to my family and all the others participating.
Thank you for reading Lillian's story and visiting my fundraising page for the Congenital Heart Walk. Raising funds for CHD research is critically important to all Heart Warriors and Heart Angels, and personally very meaningful to me.
Our team is raising critical funds for congenital heart defects! Congenital heart defects are the most commonly occurring birth defect, affecting approximately 1 in 110 babies born, or a child born every 15 minutes. Congenital heart defects are the leading cause of birth-defect related mortality.
Funded research is making a very big difference in the lives of CHD patients, helping to reduce incidences and increase survival, longevity and quality of life. Research has made a very big impact, and with survival and longevity increasing, even more research is needed to help address lifelong challenges that CHD patients will face. Every dollar in support of The Children’s Heart Foundation helps to further their mission: to fund the most promising research to advance the diagnosis, treatment, and prevention of congenital heart defects.
Please support our team, join us for the Congenital Heart Walk, or both!