Walking 4 Charley
Thank you for visiting our team page!
Our story begins with the 20 week anatomy scan ultrasound, where they found something not quite right with Charley's heart. This started us on a series of ultrasounds, echocardiograms, and countless doctors appointments. It also introduced us to a community we never even knew existed, a community made up of heart warriors and angels and their families. We were referred to UCSF for his birth and care, where we experienced so much love and care from all the doctors, nurses, and staff. After birth, Charley was diagnosed with double outlet right ventricle, transposition of the great arteries, ventricular septal defect, and coarctation of the aorta. He had life saving open heart surgery at 2 weeks old and will most likely need another in a few years. We are eternally grateful for the scientific advancements that have made it possible for Charley to be here with us today and we are passionate about raising money to give every child with CHD a bright future!
Our team is raising critical funds for congenital heart defects! Congenital heart defects are the most commonly occurring birth defect, affecting approximately 1 in 110 babies born, or a child born every 15 minutes. Congenital heart defects are the leading cause of birth-defect related mortality.
Funded research is making a very big difference in the lives of CHD patients, helping to reduce incidences and increase survival, longevity and quality of life. Research has made a very big impact, and with survival and longevity increasing, even more research is needed to help address lifelong challenges that CHD patients will face. Every dollar in support of The Children’s Heart Foundation helps to further their mission: to fund the most promising research to advance the diagnosis, treatment, and prevention of congenital heart defects.
Please support our team, join us for the Congenital Heart Walk, or both!