Our son Jace Thomas Miles was born January 15, 2019. It was a very complicated pregnancy. At 20 weeks gestation, Jace was diagnosed with Hypoplastic Left Heart Syndrome. The diagnosis meant that the left side of his heart was severely underdeveloped. The plan from that moment on was that he would have multiple open-heart surgeries to rewire the right side of his heart to do the work of both sides of a healthy heart. The first surgery would have been within the first 48 hours of his life, the second between 3-6 months, and the last around 18 months. Unfortunately, Jace’s diagnosis continued to deteriorate with each following appointment. At 37 weeks, 3 days gestation, Jace was born without a heartbeat. We are so thankful he did not suffer and he knew nothing but love and warmth his entire life.
Our hope is to aid in research for CHD so hopefully someday other families don't have to know the heartbreak we do.
Raising funds for CHD research is critically important and personally very meaningful to us. We are hoping to raise funding for CHD research, specifically Hypoplastic Left Heart Syndrome (HLHS) research to provide babies and children every opportunity to survive and thrive in life. Every dollar we raise will advance The Children's Heart Foundation's great cause!
We are disappointed we won't be able to see everyone at the Pittsburgh walk like we did last year, but we are grateful to continue to help raise funds for CHD research.
If you can help support our cause it would be greatly appreciated!
Together we can make a life-saving difference!