New York City Congenital Heart Walk

Mighty Mackenzie

Our team is raising critical funds for congenital heart defects! Congenital heart defects are the most commonly occurring birth defect, affecting approximately 1 in 110 babies born, or a child born every 15 minutes. Congenital heart defects are the leading cause of birth-defect related mortality.

Mackenzie was diagnosed in utero at 20 weeks with several CHDs. We now know (after a LOT of testing and doctors appointments) that she has right aortic arch, a left abhorrent left subclavian attached to the left vertebral artery that is creating a lack of flow in her left arm. Without surgery the possibility of steel syndrome could happen for her that would result in a seizure, fainting or a stroke. We are currently awaiting surgery to ensure that she has no limitations in her life as she grows older. 

Identifying her heart condition has taken about a year's worth of doctors all over New York, New Jersey and Pennsylvania. Our cardiologist recently told us that there are on 30 identified cases in adults. A doctor at CHOP in Pennsylvania had only seen 6 cases in her years working with rare pediatric heart patients. 

Just by looking at her, watching her play and spending time with her, you would have no idea that she is a heart warrior child. There are many children like that and then there are other children that are struggling with multiple surgeries and finding the right care. 

Please help us to fund CHD research by making a donation to our team fundraising page. Without this research we wouldn't have learned or continue to learn about Mackenzie's very rare heart. Together we can make a life-saving difference!

View More