Hi! Thank you for supporting Eva's Warriors. We would be thrilled if you agreed to walk with us - registration is free, and if you raise $75, you get your t-shirt for free! I'd like to get the biggest team possible! If you can't walk with us, please consider supporting us. We need every dollar we can get. (Note that CHD kids are called "Heart warriors." At Eva's school, the teams are called the Warriors. I chose this name because I feel that everyone who loves Eva is fighting this battle with her. We are ALL warriors.)
As most of you know, Eva was born with a congenital heart defect (CHD). It was discovered the day after she was born. At the time, we were told that she would need "only" one open heart surgery (OHS). She had her first at 18 months, in April, 2012. Although we had been told the possibility was rare, in December, 2014 she developed a side effect of her original condition that required an emergency 2nd OHS, Her 2nd surgery was in January, 2015. She was almost 4 1/2 years old. That "rare" side effect came back again after her 2nd surgery, In June, 2018, she had her 3rd OHS. Eva was 7 1/2 years old. The 3rd surgery lasted 11 hours. Eva will need at least a few more in her future - the next one will likely be before she is 13 years old.
Despite all of her medical issues, however, Eva is an incredible young woman - who never lets her medical issues stand in her way. She is a "candidate orange" black belt in taekwondo (that's three levels above being a black belt), and is testing for her "candidate green" belt in a few weeks. She is an awesome student with a desire to learn. She is silly. She is cuddly. She is sensitive. She is empathetic. She's more than I ever imagined out of a daughter. She's a terrific little sister. She's my very best friend. And she is far wiser than her age would suggest.
The Children's Heart Foundation has been part of our lives since Eva was born. They have provided us with support groups in between surgeries, care bags while we have been in the hospital, and, through their research, the hope that her issues could improve - and if they don't, the hopes that new treatment options could be available to avoid full open heart surgeries.
Our team is raising critical funds for congenital heart defects. Congenital heart defects are the most commonly occurring birth defect, affecting approximately 1 in 110 babies born, or a child born every 15 minutes. Congenital heart defects are the leading cause of birth-defect related mortality.
Funded research is making a very big difference in the lives of CHD patients, helping to reduce incidences and increase survival, longevity and quality of life. Research has made a very big impact, and with survival and longevity increasing, even more research is needed to help address lifelong challenges that CHD patients will face. Every dollar in support of The Children’s Heart Foundation helps to further their mission: to fund the most promising research to advance the diagnosis, treatment, and prevention of congenital heart defects.
Please support our team, join us for the Congenital Heart Walk, or both!