His Beautiful Heart (Team Ethan)
Ethan was born in 2013, a beautiful boy weighing 7 lbs 12 oz, eyes wide & bright. It was 24 hours later that our family learned Ethan has Hypoplastic Left Heart Syndrome, a critical heart defect where the left ventricle is underdeveloped and non-functioning. The plan of care involved three surgeries with the first being 3 days after his birth. Ethan had the final surgery, the Fontan, in June 2017 and is a thriving SIX year old today.
Medical research and advancements have given children with HLHS and other CHDs a chance at life. The Congential Heart Walk directly supports the mission of The Children's Heart Foundation: To fund the most promising research to advance the diagnosis, treatment and prevention of congenital heart defects.