Philadelphia Congenital Heart Walk

Nate the Great

Did you know that Congenital Heart Defects are the #1 birth defect and occur in 1 out of every 110 babies? And, that more babies die from CHDs than all childhood cancers combined? Before I became a Heart Mom, I had no idea either. About 25% of babies with a CHD have a critical CHD that requires surgery. Nate is one of those babies.

Nathaniel Theodore was born on June 24th, 2015 with Transposition of the Great Arteries (TGA), a VSD, and pulmonary stenosis. In his first year of life, Nate needed multiple procedures and two open-heart surgeries to survive. We owe his life to Dr. Spray, Dr. Elias and the entire Cardiac team at CHOP. We are forever in their debt and will continue to need them for the rest of Nathaniel's life.

While fixing Nate's heart, a conduit had to be put in place that will not grow with him and will eventually need to be replaced, requiring another surgery.  We recently learned that Nate's aortic artery had to work so much harder to overcompensate for the weaker pulmonary artery that an additional surgical repair for that will be needed in the future.  We have no idea what the timelines on these will be but we do know for sure that multiple more open heart surgeries are in Nathaniel's future.  This is why it is so personally important to me that we continue to raise awareness and more funds for medical research.    

On May 9th, we will be attending the Congenital Heart Walk to help raise awareness for CHDs and show support to our heart warriors!!  Help us do this by joining Team Nate the Great and coming out to walk with us at the Philadelphia Zoo.  Nate and I could not have survived these past 5 years without all of your love and help. 

We are forever grateful,

Heart Mom Emily

   

View More