Although the walk will be virtual this year, we are grateful to be participating again in the SF Congenital Heart Walk. We have a thriving 4 year old heart warrior that might not have been alive were it not for advancements made in CHD research.
Four years ago, Cyle was born with multiple complex congenital heart defects that if not immediately operated on, would have taken his life.
Unfortunately, we were not aware of his diagnosis in utero.
Fortunately, because of pulse oximetry testing, Cyle was screened and diagnosed at birth.
He had open heart surgery at 4 days old to repair his multiple CHDs. The operation went successfully overall, with some complications that have since been resolved.
However, just because a CHD has been repaired it doesn’t mean it’s fixed. CHD is a condition that requires lifelong monitoring and specialized medical care & attention. Cyle will need to be seen by a cardiologist the rest of his life and have echocardiograms to monitor the condition of his heart.
Today....when we witness Cyle running, playing, eating, talking, singing and just doing the normal things a kid his age should be doing...we are in awe!!!
In awe of how far he’s come.
In awe of God’s miracle.
In awe of how detection at birth, education & research, and medical advancements in CHD all worked together to help keep our baby alive.
That is not the case for all affected by CHD though. CHD is the most common birth defect. It occurs in 1 in 110 babies that are born, that’s every 15 minutes! Sadly, many children pass away from CHD still today. There is much more to be done in terms of research for CHD diagnosis, survival, and quality of life. That is why we walk and fundraise for this cause that is so close to our hearts.
Please consider donating to support Team Cyle or join us at the virtual walk on August 30th. =)
We hope to connect with you soon!