We are so excited to walk again this year for the SF Congenital Heart Walk. We have a thriving 3.5 year old heart warrior that might not have been alive were it not for the advancements made in research in the last few decades.
Almost 4 years ago, Cyle was born with a congenital heart defect (CHD) that if not immediately operated on, would have taken his life. Unfortunately, we were not aware of his diagnosis in utero. Fortunately though, because of pulse oximetry testing, Cyle was screened and diagnosed at birth. He had open heart surgery at 4 days old to repair his multiple, critical heart defects. The operation went successfully overall, with some complications that have since been resolved.
We say “fortunate” because he was diagnosed in the early stages. We can't even imagine the outcome of what it would've been like if we had brought him home thinking he was a healthy baby and something horrible happened without us knowing WHY or putting any intervention in place. We have read of many cases back in the day where this has happened....but thank God it didn’t happen that way for Cyle!
However, just because a CHD patient’s heart has been repaired it doesn’t mean it’s fixed. CHD is a condition that requires lifelong monitoring and specialized medical care & attention. Cyle will need to be seen by a cardiologist the rest of his life and have echocardiograms to monitor the condition of his heart. When he becomes a teenager, there may be other challenges that arise as well.
Today....when we witness Cyle running, playing, eating, talking, singing and just doing the normal things a kid his age should be doing...we are in awe!!!
In awe of how far he’s come.
In awe of God’s BIG miracle.
And in awe of how detection at birth, education & research, and medical advancements in CHD all worked together to help keep our boy alive.
That is not the case for all affected by CHD though. Congenital Heart Disease is the most common birth defect. It occurs in 1 in 100 babies that are born, that’s every 15 minutes! Sadly, many children pass away from CHD still today. There is much more to be done in terms of research for CHD diagnosis, survival, and quality of life. That is why we walk and fundraise for this cause that is so close to our hearts.
Please consider donating to support Team Cyle or simply come join us at the Heart Walk on May 30th. =)
We’d love to see you and walk together!