New England Congenital Heart Walk

Our Heart Warrior
Our Heart Warrior

JacksonStrong Heart Warrior Tribe

At 11 days old, Jackson was diagnosed with Congenital Heart Disease with a heart defect known as Ventricular Septal Defect. Jackson's VSD was large and required Open Heart Surgery to repair on December 17, 2019.

While a VSD is one of the most common of heart defects, being first time parents with no history of CHD, this diagnosis came as a devastating shock to us. We are thrilled to share that Jackson is thriving post-op, but he's not fully in the clear. Jackson will always live with a Congenital Heart Disease diagnosis and will likely be monitored by cardiologists for his entire life (the timeframe between visits will hopefully extend as he gets older).

We are walking in honor of (and with) Jackson to raise awareness and funds for CHD research. We feel incredibly lucky to have Jackson home with us and thriving, and want to support other families who live with loved ones with CHD.

Our team is raising critical funds for congenital heart defects! Congenital heart defects are the most commonly occurring birth defect, affecting approximately 1 in 110 babies born, or a child born every 15 minutes. Congenital heart defects are the leading cause of birth-defect related mortality.

Funded research is making a very big difference in the lives of CHD patients, helping to reduce incidences and increase survival, longevity and quality of life. Research has made a very big impact, and with survival and longevity increasing, even more research is needed to help address lifelong challenges that CHD patients will face. Every dollar in support of The Children’s Heart Foundation helps to further their mission: to fund the most promising research to advance the diagnosis, treatment, and prevention of congenital heart defects.

Please support our team by donating or joining us for the Congenital Heart Walk!

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