Philadelphia Congenital Heart Walk

Logan's Warriors

Our team is raising critical funds for congenital heart defects! Congenital heart defects are the most commonly occurring birth defect, affecting approximately 1 in 110 babies born, or a child born every 15 minutes. Congenital heart defects are the leading cause of birth-defect related mortality.

Funded research is making a very big difference in the lives of CHD patients, helping to reduce incidences and increase survival, longevity and quality of life. Research has made a very big impact, and with survival and longevity increasing, even more research is needed to help address lifelong challenges that CHD patients will face. Every dollar in support of The Children’s Heart Foundation helps to further their mission: to fund the most promising research to advance the diagnosis, treatment, and prevention of congenital heart defects.

Please support our team, join us for the Congenital Heart Walk, or both!

 As you all know... we thought we had a healthy baby this entire pregnancy. no red flags, a repeat test for gestational diabetes and preterm labor. But heart defects weren't on our radar. Logan was born at 36 weeks 4 days after my water broke overnight. We didn't find out the sex so to our surprise we welcomed our sweet baby boy! He was put in the NICU for low blood sugars and a heart murmur that went away the next day so he was quickly back with us and we got to home within the normal time frame for a c section. Fast forward to when we got home and we noticed his jaundice and his breathing. I took him to the pediatrician weekly and they told me they had "zero concerns." At 2 1/2 weeks old he suddenly turned a pale color and was quite mottled while we were at story hour with Avery, our 2 year old daughter. He was lifeless so we decided to drive to the emergency room at Bryn Mawr which was almost an hour away. They struggled to get blood from him and repeated tests for hours... including a spinal to check for meningitis but he was overall admitted for a UTI. When we got to the pediatric floor i expressed my concerns once again about his breathing... this Dr noticed it and had concerns as well so she ordered an Echo for the next morning. They did the echo first thing in the morning and I knew something was wrong by the tech performing the echo in our room. Suddenly the Dr came in and explained how critical care team from DuPont was coming and he will be transferred immediately. Next thing you know people are surrounding my baby and putting him in a box on a stretcher hooked up to machines and we were on our way. They bring us to the CICU via ambulance and notify us he will be receiving open heart surgery the next day. Our world was shattered. We spent as much time as we could with our boy before surgery before havig to head back to the Ronald McDonald House (who were amazing during our 3 week stay) I can't even begin to express our gratitude for those who donated/helped us/reached out to us at this most difficult time. Logan was diagnosed with hypoplastic aortic arch with coarctation of the aorta and a moderate sized muscular ventrticular septal defect (VSD- hole in his heart) and also a bicuspid valve. We spent about a week in the CICU and 2 weeks in the step down unit while of course missing our Avery. We were eventually discharged only to be back after a follow up appointment in January which showed a severe re coarctation after only 2 months. He then had to have a cardiac cath with an angioplasty which was unsucessful due to the coarct being so severe. He will require another cardiac cath with an angioplasty in just a few short months as well as another open heart surgery to remove the PA band and possibly repair the VSD. A few days later we were back in the ER due to his legs being mottled and purple where they thought he had an artery spasm from taking blood pressures. This has been a world wind and its far from over but he continues to be the happiest little guy. You wouldn't even know what he's been through. He is our warrior and we love him SO SO MUCH! Thank you everyone for all of your prayers, love and support. I hope we all can become a team for our Logan and support the research for CHD!

 

 

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