Welcome to Roberta's Page
Thank you for visiting my fundraising page for the Congenital Heart Walk. Raising funds for CHD research is critically important to all Heart Warriors and Heart Angels, and personally very meaningful to me.
My daughter, Allison, is a 23+ year CHD Warriior. Born with a set of rare and complex defects (single left ventricle, TGA, ventricular inversion and VSD) she had her first stage open heart surgery at 6 weeks old followed by the DKS and Bi- Directional Glenn at 1 year and had the Fontan completion at age 6. She has been fortunate to have lived a mostly "normal" life with few complications until recently. About 2 years ago, she was diagnosed with a pituitary microadenoma for which she has been treated with medication. It has slowly shrunk to about half of its orginal size. Around the same time, she was diagnosed wtih liver fibrosis and stage 3 cirrhosis - a common complication for Fontan patients. She is being followed by the ACHD Heart Center at Children's Hospital of PIttsburgh and the UMPC Liver Center.
Allison has always been an advocate for CHD by participating in many awareness and fundraising campaigns. Supporting funding for CHD research is something our family has done since her diagnosis in 1997. We have seen first-hand the positive outcomes of this reaseach. From a young age she always expressed a desire to help other people with heart disease. In 2020 Allison graduated from the Unviersity of Pittsburgh School of Nursing with a BSN and is currently working on a cardiac step-down unit at a Pittsburgh hospital.
Please help us to fund CHD research by making a donation to my personal fundraising page. Together we can make a life-saving difference!
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