Walking for babies like Celeste
Thank you for visiting my fundraising page for the Congenital Heart Walk. You may have contributed to my last walk for this cause a few years ago in honor of a friend and co-worker's child who survived a congenital heart defect as a baby. Little did I know then that this cause would impact my own family in such a meteoric way.
In August 2020, Ryan and I welcomed our happy, sweet, beautiful and seemingly healthy baby girl, Celeste. However, just four days after that, Cece crashed at her first pediatric appointment. Her oxygen levels dropped quickly and dramatically and she became unresponsive. After an ambulance ride and a very scary few hours in the ER, we learned Cece had a heart defect—a coarctation of the aorta. [We later learned from her surgeon she actually had an interrupted aortic arch, something they didn’t know until they had gone in to address the coarctation, because her heart decided to do it’s own thing in terms of anatomy and had a workaround for the aortic arch that worked in utero, but not out. In fact, our surgeon had never seen Celeste’s abnormality in 40 years of practice and only read of two other similar cases after he researched.] After two touchy weeks of surgery and recovery, our little one is back to her happy and healthy self. She's monitored every few months by her cardiologist and gets frequent EKGs and echos, but we are so lucky that we were in such wonderful hands and our doctors knew how to fix Cece. Research is so important and every cent matters to support all the little ones impacted by congenital heart defects.
I will be walking 11 miles in July (for the 11 days she spent in the hospital for surgery and recovery) in honor of my little heart warrior and would love your support!
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