Welcome to Scarlett's Heart
SCARLETT IS GETTING SO BIG!
She just had another cardiac catheterization this past weekend and is doing really well! They ended up having to do an intervention. She needed to have her pulmonary arteries redialated so they put new balloons in. There was initial discussion of using stents, but she’s still so little and her anatomy is off so the stents could affect flow to her left lung which is already a little weaker. The leakage where the missing pulmonary Valve is is significant but it is not an emergency to work on yet. That will require another open heart surgery. No real idea of when that will be but she will be monitored closely. We are home now until follow up appointments in the coming weeks.
If you are new to this page and our story here is a little information about our journey with CHD...
My husband and I wanted to start a family more than anything in the world. After a battle that felt like forever, we were pregnant thanks to IVF. At our 20 week scan is where the start of Scarlett’s critical congenital heart defects were discovered. It was by far the worst and most scary time of my life. At the end of testing she was diagnosed with Tetralogy of Fallot, Absent Pulmonary Valve Syndrome and discontinuous LPA.
The first hospital made us feel pressured to quickly make a decision about ending our pregnancy so we went on our way to get all of the opinions we could through any contacts we had at several different hospitals. After an agonizing few weeks we found a confident team that said they could help our little girl. With this combination of conditions there was a lot of unknown while in utero. After so many tests for the remainder of my pregnancy and a dreaded fetal MRI(I’m so claustrophobic) we were given a best case scenario and a worst case and all would be determined when she took her first breath.
Scarlett underwent her first open heart surgery at 1.5 days old. Those 6 hours were torture. But this tiny warrior came out on top.
Since then she has had 2 interventions-cardiac catheterizations to work on her pulmonary arteries. We know more is to come but right now we are going to enjoy these days.
Thank you for visiting my fundraising page for the Congenital Heart Walk. Raising funds for CHD research is critically important to all Heart Warriors and Heart Angels, and personally very meaningful to me.
Please help us to fund CHD research by making a donation to my personal fundraising page. Together we can make a life-saving difference. THANK YOU!
If you think this page contains objectionable content, please inform the system administrator.