Thank you for visiting our fundraising page for team Berry's Beats. We will be participating in the Congenital Heart Walk virtual event here in Cleveland on September 12, 2020. Congenital heart defects (CHD) are the most common type of birth defect in the United States. They affect 1 out of every 100 children. In the case of our family, 3 out of the 4 of us. Raising funds for CHD research is critically important to all Heart Warriors and Heart Angels, and personally very meaningful us.
Our little family is all too familiar with the devastating effects congenital heart disease can bring. At a very young age, Michael was diagnosed with bicuspid aortic valve stenosis and has since had two open heart surgeries to repair his heart. He will eventually require further surgery at some point in the future. When starting a family, we knew our children would be at increased risk for developing a congenital heart defect; however, we never imagined what was in store for us. At our anatomy scan for our son, Ronan, we were told there was something severely wrong with his heart. He was diagnosed with hypoplastic left heart syndrome (HLHS). HLHS is a life-threatening heart defect in which the left side of the heart is severely under-developed and cannot sustain life without intervention. Ronan has undergone two open heart surgeries and will be undergoing his third this fall. When expecting our daughter, Quinn, we were extremely nervous. She was eventually diagnosed with a bicuspid aortic valve, similar to Michael's diagnosis. We were obviously devastated, yet again, but comforted by the fact that Quinn is currently stable and requires only monitoring at this time.
Research and ongoing advancements in congenital heart disease interventions have given our family life and have given us hope for the future. We ask that you please help us to fund CHD research by making a donation to our personal fundraising page. We have set a goal of raising $1,000 and need your help in achieving this goal! We also have t-shirts available for purchase. A portion of the proceeds go directly to the Children’s Heart foundation. Please click the link to view the online store.
We, together, we can make a life-saving difference!
Thank you for your support!
All our love,
Michael, Lauren, Ronan and Quinn Berry
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