Welcome to Team Stranz!
Thank you for visiting our fundraising page for the Congenital Heart Walk. Raising funds for CHD research is critically important to all Heart Warriors and Heart Angels, and personally very meaningful to us.
Our son, Jack, was born with three congenital heart defects; coarctation of the aorta, bicuspid aortic valve and an abnormal mitral valve. Immediately after birth, Jack was taken to St. Louis Children’s Hospital. After a week of monitoring, we took Jack home under close observation with weekly pediatrician and cardiology check ups. At 5 weeks old, it was determined that Jack was ready (aka gained enough weight) for surgery to repair his coarctation. Surgery was successful!
Truth be told, Jack was doing so well we kind of forgot he had congenital heart disease. At his 3 YO well visit this Spring, our pediatrician noticed his blood pressure was a little high and differed between his two arms. This can be a sign that his coarctation had renarrowed. We moved up his cardiology appointment and in the meantime, mom took a deep dive off of the ‘what if’ cliff. What if he needed another surgery? Could it be done in the cath lab? What if it’s not his coarc, but his mitral valve (which a cardiologist once told me there is no good way to repair the mitral valve)? How am I going to explain all of this to him without scaring him? Luckily, Matt was quick to reassure me that Jack was acting like a normal 3 YO with no physical symptoms.
There is no renarrowing of the coarc, the bicuspid aortic valve is not causing any issues at this time and the abnormal
mitral valve does not require intervention at this time - a HUGE relief! We are so grateful to have a fantastic cardiology team and a pediatrician who, like mom, errs on the side of caution when it comes to her babies.
While we couldn’t have it asked for a better report, this was a strong reminder that Jack will always have congenital heart disease and at some point in his life may require intervention. We continue to raise funds for research and hope it leads to less invasive procedures, and perhaps an easier way to repair the mitral valve.
We truly appreciate your support!
Matt, Kelly, Jack & Ryan
If you think this page contains objectionable content, please inform the system administrator.