Thank you for visiting our fundraising page for the Congenital Heart Walk. Raising funds for CHD research is critically important to all Heart Warriors and Heart Angels, and personally very meaningful to me.
Mackenzie was diagnosed in utero at 20 weeks with several CHDs. We now know (after a LOT of testing and doctors appointments) that she has right aortic arch, a left abhorrent left subclavian attached to the left vertebral artery that is creating a lack of flow in her left arm. Without surgery the possibility of steel syndrome could happen for her that would result in a seizure, fainting or a stroke. She had surgery July 2020 in the middle of the pandemic.
Identifying her heart condition took about a year's worth of doctors all over New York, New Jersey and Pennsylvania. Our cardiologist told us that there are only 30 identified cases in adults. A doctor at CHOP in Pennsylvania had only seen 6 cases in her years working with rare pediatric heart patients.
Just by looking at her, watching her play and spending time with her, you would have had no idea that she is a heart warrior child. There are many children like that and then there are other children that are struggling with multiple surgeries and finding the right care.
Please help us to fund CHD research by making a donation to our personal fundraising page. Without this research we wouldn't have learned or continue to learn about Mackenzie's very rare heart. Together we can make a life-saving difference!
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