Welcome to Mighty Marshyl's Page
Thank you for visiting my fundraising page for the Congenital Heart Walk. Raising funds for CHD research is critically important to all Heart Warriors and Heart Angels, and personally very meaningful to me.
Please help us to fund CHD research by making a donation to my personal fundraising page. Together we can make a life-saving difference!
Hello! We are the Wenninger’s: party of 5! We consist of Mom-Jenna, Dad-Drew, daughter-Ella (3 in August), our son and heart warrior-Marshyl (1 in July) and our fur baby-Edna.
We found out about Marshyl at my 20 week anatomy scan and our world was completely turned upside down! It was then and there that we found out our son was diagonsed with a rare and complex congenital heart defect called Hypoplastic Right Heart Syndrome (HRHS) which consists of Tricuspid Atresia (TA) and Transposition of the Great Arteries (TGA). In simpler terms, Marshyl would be born with half a heart. We were devestated, but hopeful. We instantly dove in to learning all of the ins and outs of his CHD. It was SO overwhelming--however, we wanted to be as prepared as possible when he arrived. We are incredibly lucky to be living in Minnesota where we got teamed up with the amazing Children's of Minneapolis for all of Marshyl's care.
Marshyl was born on July 16, 2019 weighing in at a whopping 8lbs 12oz. He was perfect in every way and he completed our little family.
He had his first open heart surgery, the Norwood Procedure/BT Shunt when he was just 3 days old. We were inpatient for 43 days. His second open heart surgery, the Bidirectional Glenn Procedure, was done at 4 months old and we were inpatient 20 days. Both surgeries were performed by who I like to refer to as the man, the myth, and the legend himself, pediatric heart surgeon, Dr. David Overman. We literally owe so much to this man. His immaculate skills and steady hands are what gave our son a fighting chance and for him we will forever be grateful.
Marshyl will have his 3rd open heart surgery, the Fontan, persumably in the Summer of 2022 when he is around 3 years old. In the meantime, we are enjoying making all the memories possible with him and his big sister. Mom doesn't like thinking about that surgery quite yet! It gives me mad anxiety.
Marshyl is doing so well right now and he is such a joy to watch become his own little person. He is so smiley and loves cuddles. Our journey with Marshyl has only just begun--as CHD is a lifelong condition that he will continue to battle each and every day of his life.
Our support system is HUGE and we cannot thank the people who have had our backs thus far. Like I always say...It's a crazy ride with Marshyl in the driver's seat and all of us are just along for the ride. We will be there for him every step of the way. His fight is OUR fight.
This virtual walk/fundraiser is so near and dear to our hearts so ANY donation is appreciated! The smallest amount can make a HUGE difference. We are always looking for ways to raise money for the CHD community because research is so incredibly important to us and so many heart families. TOGETHER we will find a cure!
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