Welcome to Jenny's Page for Team Full of Hope
Thank you for visiting my fundraising page for the Congenital Heart Walk. Raising funds for CHD research is critically important to all Heart Warriors and Heart Angels, and personally very meaningful to me. As you all know, my son Asher has a complex CHD called Hypoplastic Left Heart Syndrome. During the first five months of his life he had two open heart surgeries along with three other surgeries. Asher is g-tube dependent due to a paralyzed vocal cord from his first surgery. Between his fragile start and now a global pandemic, where he is considered high risk of complication because of HLHS, he has been quarantined for almost his entire life. Despite all of this, he is the happiest 15 month old you'll meet. He fights everyday from trying to eat by mouth to catching his breath from playing too hard. He brings all of us so much hope and encourages us to be thankful for every single minute of every single day.
You can read more about HLHS here: https://www.chop.edu/conditions-diseases/hypoplastic-left-heart-syndrome-hlhs
Before the 1980s a baby born with HLHS had a very small chance of surviving past a month old. Without intervention this remains true even today. However, there are now three palliative surgeries that enable patients with HLHS to live longer than ever. Statistics for survival into adulthood are all over the map, and that is because there continues to be medical research and advancements made every year. This is why fundraisers like this are so important to those of us living in this heart world. We've met so many amazing heart warriors on this journey with a variety of CHDs. We love that the Children's Heart Foundation is on the front lines trying to improve survival rates and quality of life for these fighters. We hope you will join us by making a donation and let Asher and all those with CHD know that their fight is our fight. <3
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