The Children's Heart Foundation
  • Event Home
  • Event Details
    • Event Info
    • FAQs
    • Media Inquiries
    • Sponsor
    • 2020 Event
  • Register
    • Register as Individual
    • Form a Team
    • Join a Team
    • Resources
    • Fundraising Incentives
  • Donate
    • Donate to an Individual
    • Donate to Team
    • Make a General Donation
  • Volunteer

Welcome to Deena's Page (Mom of Breck)

Donate Now

Meet Breck.  Our Precious, crazy cute and ridiculously WILD 5 year old Heart Warrior!!

 

Breck’s story dates back to before he was born. At our 20 week ultrasound we found out that we would be delivering a baby boy with a congenital heart defect. We were sent to the CS Mott (University of Michigan) Children’s Hospital where we had a fetal intervention, which is a heart procedure through my belly, through Breck’s chest, and into his tiny heart to balloon his aortic valve. A scary procedure that worked, and helped Breck continue to grow and develop while he was in the womb. At 35 weeks Breck was born with aortic stenosis, mitral valve stenosis, and poor left ventricle function. He had two open heart surgeries when he was 1 month old and many procedures after that. Bringing us to his third heart surgery that was scheduled for April 2019. He went in for surgery to replace two of his valves that were no longer big enough for him as both he & his heart have grown quite a bit since he was a 1 month old. The aortic valve that they placed was a (new valve called the cylinder valve) it doesn’t have a lot of research but it meant a normal life with no blood thinners afterwards. He actually was the 2nd kiddo in the world to have it at 1 month old and it worked like charm for three years! This time however, the heart valve tore 2-3 weeks after surgery and Breck went in for his 4th open heart surgery and tragically onto ECMO the day following his 4th open heart surgery. While EMCO is an amazing thing when you need it, you truly never want to see your kid on ECMO, it’s the last ditch effort to save a child’s life or to give them the break when they need to fight! After about 5 hours on ECMO, Breck went in for his 5th open heart surgery after it was identified that the new cylinder valve broke for a second time. This time the surgeon had chosen a mechanical aortic valve which means a lifetime of blood thinners, however a widely used valve that has significant success. Without knowing his story, you would look at Breck and think he was a typical 5 year old. He is fun, adventurous, happy, and best of all, a cute little stinker ;) Without the advances in medicine, our Breck would not be here. He is the 2nd kid in the world to receive a handmade cylinder shaped mitral valve and a child that made it through a fetal intervention in the womb that was unheard of 15 years ago. Thank you for reading about Breck’s story and raising awareness for all the Congenital Heart warriors and angels!

Thank you for visiting my fundraising page for the Congenital Heart Walk. Raising funds for CHD research is critically important to all Heart Warriors and Heart Angels, and personally very meaningful to me.

Please help us to fund CHD research by making a donation to my personal fundraising page. Together we can make a life-saving difference!

View More
Donate Now
Join Deena's Team!
Team Breck
Achievements
TeamRaiser Achievement Badge
CHD Conqueror
I fundraised at least $1,000
TeamRaiser Achievement Badge
Self-Starter
I started fundraising with my own donation!
Personal Progress:
of Goal
$1,420 Raised
$2,000.00
Fundraising Honor Roll
Heart and Home Team - Weichert Realtors Platinum Group
$1,250
Ross and Kathleen Marsman in honor of Shirley VanAssen
$100
Anonymous
Bonnie and Richard Bode
$20

If you think this page contains objectionable content, please inform the system administrator.

1Weichert Realtors Platinum Group

(847) 634-6474 | 5 Revere Drive, One Northbrook Place, Suite 200, Northbrook, IL 60062 | © 2021 The Children's Heart Foundation, All Rights Reserved

The Children's Heart Foundation

Powered by Powered by Blackbaud

Login

Your login information was incorrect. Please try again or click here to have your information emailed to you.

Log In

Have you previously donated to or fundraised for The Children's Heart Foundation? Log in below with your username and password.


Forgot Username or Password?