My WHOLEhearted Pursuit
We were able to gratefully celebrate the life of our second daughter... a life we were never promised.
My pregnancy with our sweet Quinn was extremely raw, overwhelmingly emotional and, frankly, quite heavy for me and Josh...
At 24 weeks, our sweet baby was diagnosed with Tetralogy of Fallot, a very rare combination of 4 different congenital heart defects, requiring an upwards of 2-3 open heart surgeries within the first few years of life. We officially had a “heart baby.”
The diagnosis was clear and deafening. Her heart was literally broken... And we couldn’t fix it or change it on our own. Sorrow, grief, and helplessness waved over my little family.
Although, hope we never lost. We believe in a God and Creator bigger than any diagnosis. We prayed harder than you could ever imagine. We cried out to our family and friends - coast to coast - asking for the same.
Each and every appointment following this, from the Cardiologists and maternal-fetal specialists, her heart steadily improved. Shocking the doctors and staff alike.
At 34 weeks pregnant, we had our final follow up before delivery at Cook Children’s Hospital with the Fetal Cardiologist to determine the prognosis and our delivery plan with her Heart Team.
“We never see this kind of stuff and usually aren’t able to give this kind of news after such a diagnosis, but we don’t think she’s going to need to have surgery after all. Her VSD [holes] are just pinprick sizes now, [... the hypertrophy is gone, her blood flow looks amazing and her aorta positioning has shifted enough that we just don’t believe it will affect functionality... ] we will still have to monitor her and run some tests after she’s born but, to be honest, her heart looks great.”
Even when pain surrounds and silence falls, Jesus is so true and faithful. Although hopeful, we weren’t promised a long life with our children... but even when the tears stream, I will continue to praise Him for the grace and mercy He has bestowed on our family.
Our sweet girl made her debut earthside with minimal heart complications comparitively and her joyful and miraculous story has already made waves and shaken the ground, in which we walk.
While her heart still may not be "perfect," it has been perfectly and devinely designed.
Beyond any medical condition you could give her, she is undoubtedly a heart baby. Her testimony has touched the hearts of so, so many. No matter how many days we are gifted, we know this baby, our baby, our sweet girl is the work of a bigger purpose and a much bigger plan.
... And I believe raising awareness & money for the research of CHDs and sharing Quinn's testimony is apart of that bigger plan (& just one way that I can show my eternal gratitude for the Grace of God that Josh & I received this past year).
Please find it in your heart to donate to babies and stories like Quinn's. Unfortunately, not every story & testimony ends this way... but it is with the funding of CHD research that heart babies are able to continue to recieve the medical care QUINNtessential for survival.
#1in110 #CHDawareness #PowerOfPrayer
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