Welcome to My Personal Page
Thank you for visiting my fundraising page for the Congenital Heart Walk. Raising funds for CHD research is critically important to all Heart Warriors and Heart Angels, and personally very meaningful to me.
As you may know, our daughter Sophia Rey had open heart surgery at 4 days old. Her congenital heart defects were detected at our 20 week scan, which gave us time to change all doctors and make sure Sophia got the best care once born. Her surgery was unique as most surgeons will wait to repair the Complete AV canal till the baby is several months old, however our surgeon was able to do it at the same time he repaired her Coarctation of the Aorta. We knew the complications were high risk for her vocal cord being damaged in the process, which is still in paralysis today. Sophia has been in feeding therapy her entire life, she worked hard to wean from the NG tube just after her 1st birthday and now working SO hard to gain weight. Physically Sophia was behind at a 3month evaluation but 1 year later she is now ahead and no longer needs physical therapy. Now she is focusing on speech therapy. Her heart has minor leakage of the valves and is being monitored on narrowing of the aortic valve.
Please help us to fund CHD research by making a donation to my personal fundraising page. Together we can make a life-saving difference!
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