Welcome to My Personal Page
Thank you for visiting my fundraising page for the Congenital Heart Walk. Raising funds for CHD research is critically important to all Heart Warriors and Heart Angels, and personally very meaningful to me.
My son, Noah, was born with a severe CHD called Hypoplastic Left Heart Syndrome (HLHS). The left side of Noah's heart never developed properly and does not function. Noah needed open heart surgery to save his life when he was only three days old! Noah spent eight weeks in the hospital before being able to go home for the first time. Noah had a second open heart surgery at four months old and was in the hospital for about a week. Noah had his third and final planned open heart surgery last summer. Noah spent about seven weeks in the hospital recovering from that surgery. Noah has also had four heart caths and he has a g-tube, a special feeding tube in his belly to help him get enough nutrition and for his medications. Noah is about to turn 4 and is currently thriving!!
If it wasn't for research, Noah would not be here with us today. Research is what has made possible the three surgeries that Noah needed to have a chance at life. Despite this, the surgeries Noah did have are not perfect and are not a CURE; they are just a band aid. Noah will most likely need another surgery or heart transplant in the coming years; it is unknown when this would be. As such, Noah requires frequent check ups with his cardiologist to monitor his heart function.
Since there is NO CURE for CHD, the future for Noah is very unknown. But with research, we have hope that better treatments and procedures will be developed for children like Noah so that they have brighter futures and live longer, healthier lives!
Please help us to fund CHD research by making a donation to my personal fundraising page. Together we can make a life-saving difference!
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