Hayes was born during the pandemic and great toilet paper shortage of 2020. After a quick whirlwind entrance into the world we were so excited to get our little 7 pound 5 ounce baby home to meet his big brothers. But the hospital pediatrician had different plans..she heard a heart murmur and wanted us to see the cardiologists at Cincinnati Children’s... she got us an appointment right away. We quickly packed our things, drove to CCHMC, sat through his first EKG and ECHO then waited for the doctors to come and tell us it was nothing. As the doctor walked in and quietly sat down we knew immediately it wasn’t just an innocent murmur. We sat in shock as they told us our sweet 2 day old had a congenital heart defect. We stayed optimistic that the defect would close on its own and went on to enjoy our first moments as a family of 5. He began showing signs of congestive heart failure at 2 weeks old. We were again sent to cardiology who told us his defect was larger than they originally thought and the only option was surgical repair. After multiple cardiology visits, EKGs, ECHOs, increasing medication dosages, and worsening symptoms our cardiologist decided it was time to present his case to the surgical team and finally fix his heart. At 3 months old he underwent an 8 hour open heart surgery. With the help of an amazing surgical team, doctors, nurses, and therapists he quickly recovered and left the hospital after just 4 days. He is now off all medications, meeting every milestone, and enjoying the life of a healthy happy baby.
Funded research is making a very big difference in the lives of CHD patients, helping to reduce incidences and increase survival, longevity and quality of life. Research has made a very big impact, and with survival and longevity increasing, even more research is needed to help address lifelong challenges that CHD patients will face. Every dollar in support of The Children’s Heart Foundation helps to further their mission: to fund the most promising research to advance the diagnosis, treatment, and prevention of congenital heart defects.
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