Do you know that 1 in 100 babies are born with a congenital heart defect?! That's about a child born every 15 minutes!!!
Trevor's heart story started during a routine 20-week ultrasound appointment. We were referred to a pediatric cardiologist who told us things were ok. However, a 3rd trimester ultrasound appointment told a different story. We went back to the pediatric cardiologist, who was baffled, and sent me to Stanford in Palo Alto for additional images. They, too, were baffled. His tricuspid valve was regurgitating, but the other symptoms weren't standard. I was told that Trevor will go straight to NICU for heart monitoring right after birth, regardless if he wasn't a preemie (haha). Both CPMC and LPCH wanted us as their patients. I even told the Dr. at Palo Alto that my biggest fear was to give birth in the car and they are 45 mins away on I-280! They assured me that would never happen (haha). I continued having weekly fetal echos with the pediatric cardiologist at CPMC, even up until I was having labor contractions.
Fast forward one year, Trevor's heart has continued to be monitored and is improving. At this time, surgery is not in the foreseeable future, but it will always be a possibility. He will always have a heart murmur and will have a cardiologist for life.
Story of his life, the diagnosis is still unknown. Improving, but still a big questionmark.
With your support, we can spread awareness to those impacted through research. We are one of the few that were prepared with the news during pregnancy. Since it's part of his medical records, the doctors and nurses are able to hear his heart murmur. If it wasn't known from the start, his heart defect could have gone un-noticed. Apparently the murmur can only be heard if the stethoscope is placed at the exact position. We spread empathy for those parents who find out hours after birth and their babies are rushed for open heart surgery at days old.
Funded research is making a very big difference in the lives of CHD patients, helping to reduce incidences and increase survival, longevity and quality of life. Research has made a very big impact, and with survival and longevity increasing, even more research is needed to help address lifelong challenges that CHD patients will face. Every dollar in support of The Children’s Heart Foundation helps to further their mission: to fund the most promising research to advance the diagnosis, treatment, and prevention of congenital heart defects.
Please support our team, join us for the Congenital Heart Walk, or both!